Episode 5 : Decoration Ghost – Part 1

Posted on: February 22, 2010

Posted in: Episodes, Featured, Video

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Often Awesome The Series is a web series about Tim and Kaylans battle with ALS. Its a story about love, friends, strength and courage. Join us every two weeks for a new chapter in this amazing adventure.

Episode 5 : “Decoration Ghost – Part 1” Tim’s band, Decoration Ghost discusses the origin of the band and the challenges of performing live shows with someone who is battling ALS.

For more information about Tim and Kaylans fight visit : oftenawesome.org

If you are interested in funding research, please make tax deductible donations to the ALS TDI at: oftenawesomearmy.alscommunity.org

6 Responses to “Episode 5 : Decoration Ghost – Part 1”

  1. thedotmatrixproject Says:
    February 22nd, 2010 at 12:56 pm

    great job, guys!

  2. clearlyalec Says:
    February 22nd, 2010 at 3:24 pm

    Thanks for sharing this — very much looking forward to seeing/hearing you fine people in the flesh.

    Now, less talk more rock!

  3. Joe Says:
    April 7th, 2010 at 3:40 am

    OFTEN AWESOME AMAZING HOPE

  4. Decoration Ghost Release “The Haze of Wine and Age” « Phuzz Media Says:
    September 28th, 2010 at 6:41 pm

    […] player was forced to step down due to a disease known as ALS. You can watch a great video about it here. from → music ← Sun Lips Play Last Show, Bolmongani […]

  5. Heliftsme Says:
    April 25th, 2012 at 9:08 am

    The series is nominated for Best Documentary Series for a Webby. Please help us take home the People’s Voice Award for voting! Go to the youtube titled: “Often Awesome The Series: An ALS Love Story Official Trailer”, and click the link to the Webby awards. Ends 4/26/2012.

  6. Bonny Bonobo Says:
    November 3rd, 2013 at 9:52 pm

    My name is Helen Barratt and my mother died of MND or Lou Gehrig’s ALS in 2009. My latest forum article called ‘Australian Researchers Discover Potential Blue Green Algae Cause & Treatment of Motor Neuron Disease (MND)&(ALS)’ and its link to Parkinsons’s and Alzheimer’s diseases can be found at Science20 under the medicine forum.

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