Wrapping up Often Awesome The Series

Posted on: December 18, 2012
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For those who may be finding out about the series for the first time, Often Awesome the Series is a web series about our friends Tim and Kaylan and their battle against ALS, also known as Lou Gehrig’s Disease. They had an amazing group of friends and family supporting them, the Often Awesome Army, and this is their story.

We launched Often Awesome The Series three years ago on December 27th, 2009. When we started the series, we did it to keep close friends and family members aware of what was going on in Tim’s life and to hopefully help Tim and Kaylan raise money for his quality of life care and medical bills. I don’t think we had a clue as to what we were getting into. We knew it would be difficult at times, we knew it would be amazing at times but we had no idea that it would take us on a three year journey that would be a life changing adventure.

Year one: When we first started the series, Tim was very active. While he did show signs of the disease, it didn’t slow him down too much. We had decided, probably unwisely, that we would produce an episode of Often Awesome every two weeks. For those of you that don’t know anything about video production, creating an 8-10 minute episode every two weeks is a lot especially considering our crew consisted of me and Andy. To put that in perspective, that’s like creating two feature films in a year with just two dudes. We felt like there was a lot going on that first year and we wanted to document as much as we could. Also, it was important to keep Tim’s support group, whether local or abroad, involved with his life. Not only did we capture many of the amazing things that Tim was doing, we captured benefits that others were putting together to help with Tim’s medical care. We captured music benefit shows, art auctions, the “Shirt Off My Back” quilt project, an ALS Walk, a Tattoo benefit and a dance party benefit. Not only did we have some amazing stories to tell but we were meeting just the most incredible, caring people. I think one of my favorite episodes was #18: All That Yas. It featured Yasmine, a 4 year old artist, that held her own art auction to raise money for Tim. This episode really embodies the fact that we all have something (if not money) that we can use to help others.

Not only were all these events happening but Tim and Kaylan got married too.

Year two: By the time year two rolled around, Tim’s health had really taken a turn for the worst. He had become mostly bed ridden but Tim’s support group had really grown by this point. There were many people who volunteered to handle his day to day medical needs. Tim also eventually lost the ability to speak that year but it did little to stop his voice from being heard. While we only produced 7 episodes that year, it was Tim who started to message celebrities to see if they would do intros for the episodes. Episode 31 would feature an intro from Adrian Young of No Doubt and other episodes that year would feature intros from Billy Gould (Faith No More) and Scott Avett (Avett Brothers). This was something we’d continue to do throughout the remainder of the series. This year also saw more great benefit shows including another music benefit show, a burlesque benefit from the ladies of Purrrlesque, another dance party benefit and a film screening. There are two episodes from that year that I’d like to share. The first is #27: Any Of Us Can Do It. It features Scott Avett of the Avett Brothers talking about his awakening to service for others and how rewarding and fulfilling that service is.

The other episode from that year that I’d like to highlight is #32: A Day In The Life. This episode shows what an ALS patient goes through in a typical day. There were times that Andy and I would feel awkward filming but Tim would always insist we document these things so the world would know what ALS was like. That selflessness and that willingness to show even his most vulnerable moments speaks to the type of person Tim was.

Year two would see Tim lose his battle with ALS but his fight would continue.

Year three: Even though Tim was no longer with us, year three would still see 3 more episodes. These episodes would be Tim, Kaylan and the friend’s goodbyes and it would also be a passing of the torch to those who continue the fight. Episode 35: The Bench would see Tim’s friends burying some of his ashes and planting a Bench in his honor. This episode would also see an intro by guitar legend and ALS activist Jason Becker. Jason was an amazing guitarist with a great solo career but once he joined the David Lee Roth band he was set to be on the level of Eddie Van Halen. Right before his first tour with Roth, Jason began to feel a “lazy limp” in his leg. Soon after he would be diagnosed with ALS and given 3-5 years to live. Well, Jason has been battling ALS for more than 20 years and is still writing music. His story was released on DVD today. You can find it here.

Episode 36: Passing The Torch, the series finale, speaks to the future of the Often Awesome organization and also features New Orleans Saint and Super Bowl Champion, Steve Gleason. Steve was diagnosed with ALS but much like Tim he had an amazing group of friends and family that were willing to help him with his battle and his willingness to create awareness. Team Gleason can be found on Facebook and through their website.

Andy and I would both like to thank Tim, Kaylan and the Often Awesome Army for allowing us into their lives. It’s been an amazing journey and we’ve been honored to tell this story. While I’m sad that Tim is no longer with us, I’m very happy that the awesome person that he was will live forever and continue to help others affected with ALS through this series. Please continue to share the series and help raise awareness.

Thanks so much for all the support!
Blake Faucette and Andy Coon

Episode 36: Passing The Torch

Posted on: December 18, 2012
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Episode 36: Passing the Torch – Often Awesome becomes a nonprofit organization and continues raising ALS awareness and Steve Gleason takes the torch from Tim and the Often Awesome Army and continues the battle against ALS with his organization Team Gleason.

Often Awesome The Series is a web series about Tim and Kaylan’s battle with ALS (Lou Gehrig’s Disease). Its a story about love, friends, strength and courage. Join us every month for a new chapter in this amazing adventure.

Team Gleason on Facebook:

For more information about Tim and Kaylan’s fight and to help them please visit : http://oftenawesome.org

Do you want to help support this series? Info here:

Often Awesome The Series on Facebook:

For more information about the filmmakers visit:

October 11, 1979 – August 23, 2011

Posted on: August 26, 2011
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On Tuesday morning, surrounded by family, friends and caregivers, Tim peacefully passed.

We lost a friend, a husband, a brother, a son, a colleague, a creative genius, a warrior for love and a genuine human being. As much as it saddens us that Tim’s body is no longer on this earth we are content that he chose when to go…not the disease. He is at peace. Pain free. We love you Tim.

The Often Awesome Benefit: A Year to Remember – Live at Kings Barcade

Posted on: March 17, 2011
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The Often Awesome Benefit: A Year to Remember

Models for Charity & Often Awesome The Series present The Often Awesome Benefit: A Year to Remember, March 17th, at Kings Barcade in Raleigh. Doors Open at 7:30 p.m. & the show starts at 8:00p.m. Cost $10. Door Proceeds will go to the The Often Awesome Org. Along with six prodigious music sets from a variety of local talent, we will be showcasing an episode from the award winning film retrospective by Often Awesome The Series.

ALL Ages Show!


Often Awesome The Series is a web series about local musician Tim Lafollette and his wife Kaylan’s battle with ALS (Lou Gehrig’s disease). It’s a story about love, friends, strength, and courage. It’s about building a community of friends and family, and creating and spreading awareness through benefit shows, web episodes, and encouraging everyday people to step up and be a part of the Often Awesome Army to help find a cure. OA the series has won Most Outstanding Documentary Web Series LA Web Fest 2010, & was an Official Selection at the 2010 Carrboro Film Festival, & Official Selection at the 2011 LA Web Festival.

Band Lineup for The Often Awesome Benefit: A Year to Remember includes:

Johnny Paul Jason, the songwriting team from Raleigh NC’s The Hanks (1987 – 2008). As with The Hanks some 24 years ago, this band continues what was then the pioneering alt.country / cowpunk sounds that predated the No Depression / Uncle Tupelo / Whiskeytown bandwagon by several years.

“Reese McHenry has a voice that can rattle chandeliers at 50 paces. Not just with power but with the bluesy depth of Big Mama Thornton, where everything she sings sounds a little, well, dirty.” –Fuse “This is terrifically uninhibited garage rock with currents of blues and stoner metal bubbling beneath the surface.” -Razorcake

The Breaks line up works as an uptight four piece: Brunson Hoole on drums, Tray Batson on bass, Steve Carr on guitar and John Ensslin singing. Influences include Tubeway Army, Mott the Hoople.

SPIRALFIRE, Sinclair Vernon – the North Carolina native with a voice that can simultaneously melt your heart and peel paint off a jet engine – put together a band of raucous villains wielding rock and roll implements for the sole purpose of destroying pap and returning rock to its rightful, glorious, epic place in popular music.

Bustello’s sound has recently been described as a blend of Stiff Records power pop and ’60s garage, with ample shades of surf and rockabilly. Members include Ben Clarke, formerly of the highly influential “Metal Flake Mother;” bassist John Plymale, the Indy record producer of Superchunk, Dex Romweber Duo, and The Meat Puppets; & Drummer Jody Maxwell (along with Plymale) a founding member of NC’s “Sex Police” as well as Chapel Hill mainstay “Gumption.”

Poster/graphic design by http://www.tadpoledesigns.com/

A BIG thankyou to Riley Miller of SPIRALFIRE for agreeing to be our Master of Ceremonies & Stage Manager.


Posted on: March 6, 2011
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*all proceeds will be donated.

Free live streaming by Ustream 

Social Stream


March 6th

Greene Street Club
113 N. Greene Street
Greensboro, NC, 27401

Often Awesome Benefit Concert featuring…

Jonas Sees In Color
w/ Decoration Ghost
The Lake Isle
Funny Like A Funeral
The Kitchen Sink Fiasco
Caitlin Watkins

Doors 6:30pm
Show 7:00pm

Learn about Tim LaFollette & the Often Awesome Army by visiting oftenawesome.org

Donations & volunteers appreciated. Please contact:

Advance: $10.00
Day Of: $10.00
All Ages
(*$2 surcharge for under 21 payable at the door)

Presented by Progressive Music Group


Perpetual Burn: The Story of Jason Becker

Posted on: January 13, 2011
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The true story of a paralyzed musician who composes music with his eyes. Jason, a musical genius and prodigy, was diagnosed with ALS at just 19. To help fund this project you can go here.

This is exactly why we need to create more awareness about ALS

Posted on: December 5, 2010
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Family and friends are remembering a White Oak High School freshman and the remarkable impact she made on the entire community in the past year.

Sabrina Parker, 16, died on Tuesday surrounded by family and close friends at her home after a year-long battle with amyotrophic lateral sclerosis or ALS, commonly referred to as “Lou Gehrig’s Disease.”

Most people who develop ALS are between the ages of 40 and 70. Sabrina — who was diagnosed at 15 — was the youngest patient to be treated for the disease at Duke University Hospital.

Her grandfather Noland Parker said that Sabrina maintained a positive attitude and made the best of every moment.

“She enjoyed life the best she could, and we allowed her free reign on that … We didn’t try to hold her back because we were scared something might happen,” Noland said. “She liked her freedom and wanted to get up and go when she wanted to and not let machines or this disease hold her down.”

Noland and his wife Zelma became Sabrina’s legal guardians after her mother, Melissa Kay Parker, died from ALS at age 24. He said that they enjoyed watching Sabrina grow into a mature and respectful young woman.

“She was kind of quiet and she got along with everybody and she did everything that other kids were doing,” he said. “She played softball and liked to be around her friends, talking and texting on the phone; she liked listening to music.”

As her health worsened, Sabrina lost her ability to breathe, swallow and speak on her own, and her weight began to drop significantly. She had to eat through a feeding tube and had tracheotomy surgery in September to aid with her breathing and speech.

Because of her daily medications, breathing treatments and fatigue, she was unable to return back to school. However, it was her relatives and friends who stayed by her side along the way to keep her going.

On Oct. 16, Sabrina’s boyfriend Matthew Scozzari, 15, and 40 of her friends at White Oak High School surprised her with a special homecoming dance at a relative’s nearby barn. Matthew said that he was honored to spend every moment that he could with her.

“She made me want to be a better person… Just being with her those last few moments I wouldn’t change for the world,” he said.

Read the rest of the article here.